Tuesday, October 21, 2014

Huge Dottie News!

Dottie came off the respirator today! Yay! They also took out her *picc line, which is also some great progress. 
 
Dottie's currently being switched every 6 or so hours between a cpap mask and nose cannula

Here's her picture from today. 

This was very unexpected but super great news for her!

We are still waiting for her surfactant deficiency genetic test results to come back hopefully on Friday, October 24th. 

The genetic test results should tell us all the information we need to progress on her treatment. 

Thanks to everyone for keeping poor little family in your thoughts, we greatly appreciate it. 



 



  1. *A peripherally inserted central catheter (PICC or PIC line) is a form of intravenous access that can be used for a prolonged period of time (e.g. for long chemotherapy regimens, extended antibiotic therapy, or total parenteral nutrition).

Tuesday, October 14, 2014

Darling Dottie - Newborn Photos


Two days after Dorothy was born and admitted to Dell Children's Medical Center, she had some professional bedside pictures taken. 

Heather who works with The March of Dimes foundation, brought Christine Garcia, a professional photographer, by to work her magic and take pictures of our precious Dottie. 

We received all photos in color and black and white, which I thought was just great. 

I thought I'd share some of my faves from her little newborn photo shoot. 





Thank you so much to Heather from March of Dimes, and Christine Garcia for donating her talent and time to take pictures of our sweet baby girl.

 


 
 
 
 

Thursday, October 9, 2014

Photo Phun (get it?)

Since there's so much going on, and Mama needs a break from explaining everything going on, I thought today's post would mostly include pictures. 

Whooo,pictures! 


So this happened this morning. It feels like forever since I had a good old fashioned Johnny cuddles. 


With Halloween decorations strewn about the house, of course JB has gotten in on the action. We feel the same about spiders, clearly. 


Dottie prefers to sleep on her tummy, just like Mama. How could I resist a picture of those cute and sassy baby feet? 


It's not a photo update without an artsy silhouette! These dudes weren't feeling so hot over the weekend (well, none of us were). No way in hell I was going to allow pictures of my sickness to be taken. But these guys are so cute even when sick! 


On Friday I met up with Penni and spent a couple of hours eating massive amounts of Home Slice pizza, drinking red wine and talking about fun stuff. It was a nice birthday break from all that's going on. 


I've managed to get in some solid Dottie cuddling time in lately. It makes me so happy to finally be able to hold her for an hour here and there. The last two weekends we had sickies in the house, including myself, so it greatly cut into my baby girl cuddle time and made me so sad that I couldn't be with her on my birthday. Everyone is well again so I'm taking full advantage of mommy daughter cuddle time! 

What have your last couple of weeks looked like? 
 
 


 
 
 
 




Wednesday, September 24, 2014

Dottie The Daredevil - My NICU Baby

Dorothy Mae Lynn Bogus was born on September 18 at 1:21 PM. She was 8 lbs. 2 oz. 19 1/4 inches long.

3 days old

I tried to put everything into this post that I could think of, but even at 10 days old there's so much happening every day that it's impossible.


This is our first picture together, and as of today, September 28, I have still not held my daughter. She is in Dell Childrens Medical Center in the NICU unit.

Her door to her private room at Dell Childrens I decorated for her. 

 

She has persistent pulmonary hypertension, which basically boils down to a really big heart problem.

If you'd like to keep up on daily updates of what's happening with her, and myself, and our family. Your best bet is to follow me on Instagram or friend me on Facebook.

Right now it's just easier for me to post daily updates on those than it is to write one big blog post explaining everything. 

I can assure you that we genuinely appreciate the outpouring of love and support towards our family during this rather difficult time in all of our lives. 

If you have any questions regarding what's going on and would like to email me, please feel free, and I'd be happy to answer any questions that I am able to at this time.



 
 

Friday, September 5, 2014

So Many Things!


There's just been so much going on, you wouldn't even believe it!

Dorothy will officially be here in less than two weeks, which we are all so very excited about and probably a little stressed out about too, to be honest.

Dorothy and my first official bathroom selfie in the new home! 
37 weeks 1 day. 
 
We closed on our first family home yesterday, which was so awesome and I'm so happy the dogs and the kids will be having their own backyard.


Can you even believe this awesome cake our realtor made for us? Who knew she made cakes! I think I might have to order one for when Dorothy comes home they are so amazingly yummy.

Speaking of realtors, our realtor was Heather Balusek, she works with Keller Williams.

 Not only did she find the perfect home for our multi generational/huge family, she would meet us after our normal work hours. She would look at three or four houses in one day with us, and did whatever it took to make us know that we were important to her, to make sure that we found what we really needed for all of our needs. Adding to that, she was only a phone call, text message or email away at all times. 

I can't even tell you how comforting it was for our family to know that whatever questions we had, or houses we wanted to look at, or concerns she was always right on the ball and always got back to us extremely promptly, usually within minutes to be honest.

I can honestly say, that she went above and beyond her duties as a realtor and if we are ever looking again she will be the first person that we contact.

If you're looking to buy, sell, rent, or anything having to do with realty, I highly suggest you contact Heather.


Heather and Johnny, with his Nana and Papaw - proud first time homeowners! 


Papaw and our new little home!
 
 What are some of the milestones your family hit this summer? I'd love to know!

Sailor

Sailor
All Trouble.